I called Congressman Ralph Hall's home office in Rockwall to request a meeting to discuss HR678 the Huntington's Disease Parity Act. HR678 would revise the neurological disease listings used by the Social Security Administration to determine an individual's disability status. This has not been updated in more than 20 years. Also, HR678 would grant a waiver of the 2 year waiting period from the point someone begins receiving disability benefits to when they are eligible to receive Medicare. This is urgently needed. if you feel this is a worthy case please call Ralph Hall's office at 972-771-9118 and ask him to cosponsor HR678.
Once our meeting is confirmed I will post an update and thank you all for any support you offer. More information about Huntington's Disease at www.hdsa.org